{"product_id":"shelter-from-the-storm-caring-for-a-child-with-a-life-threatening-condition-9780738205342","title":"Shelter from the Storm: Caring for a Child with a Life-Threatening Condition","description":"Critically ill and unlikely to survive. A recent Harvard University study on pediatric end-of-life care has shown that the medical community is failing such children and their families. Indeed, in their effort to be ever-hopeful and cure-oriented in the face of a child's terminal illness, they neglect to advise parents on the basics of emotional support for all family members, pediatric pain medication, and the need for making plans and worst-case preparations. \u003cp\u003e\u003c\/p\u003e Based on the National Advanced Illness Coordinated Care program and the stories and advice gleaned from co-author Joanne Hilden's years of work as a pediatric oncologist, Shelter from the Storm fills this advice-and-caregiving void. A compassionate road map to what the family may have to face, what they may be asked to decide, and how they might want to involve their child in the decision-making, Shelter from the Storm will help parents and caregivers make informed, loving, and protective choices on behalf of their children in the most trying of times.\u003cbr\u003e\u003cbr\u003e\u003cbr\u003e\u003cb\u003eAbout the Author\u003c\/b\u003e\u003cbr\u003e\u003cb\u003eJoanne Hilden, M.D.\u003c\/b\u003e, is the Chair of the Department of Pediatric Hematology\/Oncology and Medical Director of Pediatric Palliative Care at the Children's Hospital at The Cleveland Clinic in Cleveland, Ohio. \u003cp\u003e\u003c\/p\u003e\u003cb\u003eDaniel R. Tobin, M.D.\u003c\/b\u003e, piloted the FairCare program for peaceful dying at the V.A. Hospital in Albany, New York. He is now expanding the program to a network of other hospitals and consulting for insurers on end-of-life issues. \u003cp\u003e\u003c\/p\u003e\u003cb\u003eKaren Lindsey\u003c\/b\u003e is coauthor of \u003ci\u003eDr. Susan Love's Breast Book\u003c\/i\u003e and \u003ci\u003eDr. Susan Love's Hormone Book\u003c\/i\u003e.\u003cbr\u003e","brand":"Da Capo Lifelong Books","offers":[{"title":"Default Title","offer_id":50612923629842,"sku":"9780738205342","price":14.99,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0831\/4771\/8930\/files\/img_fb288619-a444-4a92-bd94-0a263d6e09e8.jpg?v=1732381148","url":"https:\/\/surprise-castle.myshopify.com\/products\/shelter-from-the-storm-caring-for-a-child-with-a-life-threatening-condition-9780738205342","provider":"Surprise Castle","version":"1.0","type":"link"}