{"product_id":"caring-for-children-who-have-severe-neurological-impairment-a-life-with-grace-9781421409375","title":"Caring for Children Who Have Severe Neurological Impairment: A Life with Grace","description":"\u003cp\u003e \u003cb\u003eAn expert physician empowers parents to make informed decisions about their child's care.\u003c\/b\u003e \u003c\/p\u003e\u003cp\u003eGlobal impairment of the central nervous system, whether stable or progressive, is often called severe neurological impairment (SNI). A child who has SNI will be cared for both by specialist clinicians and by parents at home. A parent is a child's best expert and advocate, and many parents become highly skilled in managing their child's care. This guide provides information to help parents increase their knowledge and improve their caregiving skills. \u003c\/p\u003e\u003cp\u003eIn \u003ci\u003eCaring for Children Who Have Severe Neurological Impairment, \u003c\/i\u003e Dr. Julie M. Hauer advocates shared decision making between family caregivers and healthcare providers. She details aspects of medical care such as pain, sleep, feeding, and respiratory problems that will be particularly useful to parents. Tables and key points summarize discussions for clear, quick reference, while case studies and stories illustrate how different families approach decision making, communication, care plans, and informed consent.\u003c\/p\u003e\u003cp\u003eParents and other caregivers will find this book to be indispensable--as will bioethicists and clinicians in pediatrics, neurology, physical and rehabilitative medicine, palliative care, and others who care for children with neurological and neuromuscular disorders. Dr. Hauer offers hope and practical coping strategies in equal measure.\u003c\/p\u003e\u003cbr\u003e\u003cbr\u003e\u003cbr\u003e\u003cb\u003eAbout the Author\u003c\/b\u003e\u003cbr\u003e\u003cp\u003e\u003cb\u003eJulie M. Hauer, M.D., \u003c\/b\u003e is an assistant professor, medical director of Seven Hills Pediatric Center, and a staff member in General Pediatrics, Complex Care Service, at Boston Children's Hospital Harvard Medical School.\u003c\/p\u003e\u003cbr\u003e","brand":"Johns Hopkins University Press","offers":[{"title":"Default Title","offer_id":50515150536978,"sku":"9781421409375","price":41.99,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0831\/4771\/8930\/files\/img_7107ae5f-6e40-4573-b8b2-94ea94f54ee6.jpg?v=1730999029","url":"https:\/\/surprise-castle.myshopify.com\/products\/caring-for-children-who-have-severe-neurological-impairment-a-life-with-grace-9781421409375","provider":"Surprise Castle","version":"1.0","type":"link"}